Resources

In just a few more days it will officially be International Lyme awareness day.  I thought an appropriate place to kick off the month would be to share just a couple other Lyme websites (don’t worry, I’ll send more soon, this is just a start).  Because even if I share lots of information, there is no way I can cover everything.  Plus, part of the reason Lyme is so complicated is because it affects every person so uniquely.  So below are a couple recommendations I have for you:

WEBSITES: 

-http://lymewarrior.us/  is dedicated to raising funds to continue to do research and support Lyme warriors.

-https://globallymealliance.org/  an organization which has done extensive research and work to raise awareness.

-https://themighty.com/search/?search=Lyme%20  A huge community of chronic illness warriors who have new articles published nearly daily. They cover so much, including Lyme, chronic fatigue, chronic pain, mental illness, and much more. And nearly all the posts are written by people who are chronically ill. So an interesting perspective for sure. (Once you’re on the site you can just search for the topic you want to read about).

If you have social media I can also share a few pages with you that would be helpful. 

I’m going to leave it at that for now. 

LYME DISEASE AWARENESS MONTH

You’ve likely caught on by now, May is Lyme awareness month, and May 1st is Lyme awareness day.

I’m all for raising awareness every day, but on May 1st we want everyone talking about it. Wether that be in person, or through social media (Ex. Facebook, Instagram, or Twitter). Hopefully, if enough people are talking we can get the subject trending. By doing so we can get a larger number of people learning more. With the goal being: action, more understanding, more funding (for research and treatment), prevention/earlier detection. And hopefully this will lead to improvements in the way Lyme disease patients are treated.

Throughout the month I am hoping to cover as many topics as possible. And at the end of each week I hope to do a Facebook live Q&A, where I can talk about what I’ve posted during the week, and answer any questions you may have on those subjects.

Just a heads up, during the month I plan on being very open and honest. So I’m not going to be skipping over awkward or challenging subjects. My goal is not to offend people, but I firmly believe that in order to get the help and support we need, and the necessary awareness, we have to be open, and continue to shed light into this awful disease.

And here’s where you come in: There are a number of ways you can be involved. I’ll include a few ideas.

1. Sharing or interacting with my posts.

2. Writing your own thoughts (if you need ideas you can ask me, or someone in your life who has Lyme).

3. Ask questions

Here are a few ideas for hashtags you can use to join the conversation: #Lymedisease #chroniclymedisease #Lymediseaseawareness #Lymeaware #Lymediseaseawarenessmonth2018

I would deeply appreciate your involvement In this project (on May 1st, and throughout the whole month).  Thanks in advance, from me, and many others who battle this awful disease, and continue struggling with the lack of treatment and awareness.

LETS CHANGE THAT!